Just to give you a preliminaray review of the retrospective analysis of the SSPE patients sent by you. We have gone thru 12 patients in detail. Most of the cases show clinical improvement once on your therapy. Those to show maximum benefit are those started on yur therapy soon after onset of the disease. Once the disease process has been on for a few yrs the benefits are still seen but of limited value.
The EEG shows significant improvement in most cases too. Actual normalisation is seen in a few. The MRI picture does not show any improvement wth therapy indicating that the disease process is on going inspite of treatment. I have no proof but it would be worth investigating the benefits of your therapy as it seems to have obvious neurological benefit at a cellular level. While neural cell function seems to improve the virus still slowly eats into the cell with time.
Thanking you, Yours sincerely,
Jaslok Hospital and Research Centre Wadia Children's Hospital,
On behalf of all children in the world suffering from SSPE (Subacute sclerosing panencephalitis), I want to tell you our story, Bosnian SSPE story.
]Let me introduce myself. My name is Edin Bjelopoljak, I come from a small town in Bosnia, named Kakanj, industrial city in southeastern Europe. Professionally I work as Secretary General of the Association of Employers of Kakanj and I am involved in the economic developments in Bosnia and Herzegovina, as well as access land in the European Union. My facebook profile https://www.facebook.com/edin.bjelopoljak and my work website: http://www.upok.ba/en/ I am married, and I have 4,5 year old twins, Azra and Armin.
This story may sound unrealistic, but every word has its own medical report, videos and photo report.
Through the story I'm going to mention the actual names of doctors and institutions, because I want you to feel our experience in fighting this terrible disease. We were on the edge of life.
Our struggle began 4 years ago, when my 14-year-old cousin Edna Kovacevic was diagnosed with Subacute sclerosing panencephalitis. My uncle Samir Kovacevic, father of Edna, he came to me with a proposal to contact the clinic at Padua in Italy.
He did not talk much, just said that we have to look for doctors outside of Bosnia and Herzegovina. And since I'm talking about English, and since I was an operative in the work, he asked me to help him.
Samir Kovacevic facebook profile: https://www.facebook.com/profile.php?id=100004819302186&fref=ts
Edna Kovacebic facebook profile: https://www.facebook.com/edna.kovacevic?fref=ts
From the University Hospital in Sarajevo, department of pediatrics, led by Dr. Feriha Ćatibušić and Dr. Smail Zupčević, we went to Slovenia at the Clinical Centre Ljubljana because in Sarajevo, we could not do cerebrospinal fluid findings.
At thhe Clinical Center in Ljubljana, the well-known neurologist pediatrician, Dr. David Neubauer, who also made cerebrospinal fluid findings and who confirmed the diagnosis of subacute sclerosing panencephalitis for the first time. In Ljubljana we learned that Edna has a diagnosis of subacute sclerosing panencfalitis.
When learning of the diagnosis of SSPE, parents of only fell unconscious, because they could not face the fact that Edna could quickly leave this world. According to forecasts dr. David Neubauer, Edna had even one or two years of life, indicating that disease progression to go very quickly, and that Edna will eventually die, because there is no known cure for this disease.
According to the recommendation of dr.David Neubauer, who has given us support, I got the contact information on the famous doctor from Turkey, in the University Center in Ankara. We contacted dr.Banu Anlar, which has the most experience with SSPE diagnosis and that is the leading doctor in the world for this disease.
We immediately went from Bosnia to Turkey, on the examination by Dr.Banu Anlar. Edna is still able to walk, so we had to be quick.
In Ankara, dr.Banu Anlar we recommend treatment with Betaferon, isoprinosine, carbamazepine, which is the therapy with the highest percentage of proven successful. According to my reserarch knowledge, Dr. Generoso Gascon from Boston clinic Massachusetts, made a study in which this alternative therapy proved useful to stop the progression of the disease SSPE.
We started with therapy. Medicines for the treatment we have collected from the European Union. Edna used the therapy of conventional medicine and never gave up on therapy that has given us by dr.Banu Anlar. We were back to Bosnia and we started with the therapy. Edna finished treatment with Betaferon, continued to use carbamazepine and isoprinosine, but condition was getting worse and worse.
Edna began to speak slowly, unreasonable, began to behave irritably, her movement became slow motion. She could not hold a fork, and drink water from a cup because her hands were shaking. Tremors and twitches began and the hands and feet. Finally appeared and twitches in Edna's head.
Please note that for all the above mentioned, we have medical records, pictures, videos and findings of doctor.
In my research, I contacted the clinic in the United States, Cuba, Russia, Germany, Switzerland, Italy, Croatia, Serbia, Slovenia, but they are all just talk - there is no cure, we are sorry. When I mention that I was at dr.Banu Anlar, other doctors just say, dr.Banu Anlar is a top doctor, we can not help.
My dear Mr. Isalkar, I've never given up on research, of addressing to the doctors from around the world, and I do not think God has not abandoned us.
I do not know how, in a sea of received mails stating the same sentence, "Sorry", one night I received an email from some dr.Gunvant Oswal from clinics in Pune, India states. He said, "Dear Edin, I think I can help your cousin Edna. I have a cure for this disease!".
Official website of Dr.Oswal's clinic website: http://www.autismtreatmentindia.com
I could not believe it, I immediately ran to the house of the parents of Edna, and showed them the mail.
We immediately resume communication with dr.Oswal and asked to send us a list of the necessary things that we need to meet in order to apply for a cure. This cure is called "g-therapy".
We immediately contacted authorized English translator, translated medical records, made a video report - showing Edna's walk, standing up, talking, eating and so on.
Edna situation was getting worse and worse. From phase 1, she was quickly moved into phase 2 and has already started to phase 3,
what was meant to be near death.
Dr.Oswal said that children with the disease can get free g-treatment, because it is the most difficult diagnosis. He wanted to help. We immediately contacted the embassy of Bosnia and Herzegovina in New Delhi, asked His Excellency Ambassador dr.Subasic to get in touch with dr.Oswal to thank on behalf of the family.
Edna received the first g-therapy. Edna's only condition was terrible. We had no choice.
We received instructions from dr.Oswal Team how to use g-therapy. G-treatment did not cancel Edna conventional therapy.
Edna got g-therapy through the Ministry of Foreign Affairs of Bosnia and Herzegovina and the Bosnian embassy in New Delhi, a special thanks to the sincere respect of His Excellency dr.Subasic Sabit and dr.Oswal. I personally visited Sarajevo in the Ministry, to take medication for Edna.
Edna has received g-therapy for the next 6 months. She began to use. At that time Edna stayed in the family house outside of Kakanj town in the fresh air and healthy food. All we had to change her whole life.
We were always in contact with dr.Oswal, receiving support, words of encouragement. For us, dr.Oswal is certainly a candidate for the Nobel Prize for Humanity and Medicine. Now you will hear why!
After 4 months of g-therapy, I was contacted by Edna parents to visit them in the family house outside of Kakanj, because they have something important to say. I was worried and I immediately went to see them. I went with my family to a family dinner to Edna's parents.
We could not believe it. Edna was playing badminton in the garden. Laughing, even teasing, provoked me to play badminton with her.
Her parents said they did not believe what was happening. I immediately recorded and sent dr.Oswal video. We were all happy! Tremor in the head, twitching hands, slow speech, bedwetting, slurred speech - all gone!
After a month, we went to the University Centre in Sarajevo, on a regular examination by dr.Catibusic and dr.Zubcevic.
I remember that situation, when we entered the cabinet of doctors in University Centre in Sarajevo, there were 10 medical students who dr.Zubcevic explaining what SSPE diagnosis is, expecting to show them the girl who was supposed to be in seriously bad health condition, but ... Edna entered the cabinet on feet and she asked with a smile Doctor - "How are you?".
Doctors were left in amazement. They asked how?I showed them a brochure clinic dr. Oswal.
We were asked - if they can give our contact details to other parents of children suffering from SSPE in Bosnia and Herzegovina.
Thanks dr.Oswal, in Bosnia and Herzegovina, doctors gave our contact information to all parents of children suffering from SSPE's. The main reason is that Edna fully recovered, but we know that in this disease there is no recovery, but it just can not stop the progression, not to recover. In our case, thanks to the good Lord and to dr.Oswal, Edna is fully recovered.
Soon we established the Association of children suffering from SSPE in Bosnia to Herzegovina, we have created a group of 7 children. After we created a facebook group to get more than 8,500 members on the group. Even our national football team gave us support.
Official facebook group of the Association of children suffering from SSPE in Bosnia to Herzegovina https://www.facebook.com/groups/275370515994031/
All 7 children have received treatment from the g-dr.Oswal. The Ministry of Foreign Affairs of Bosnia to Herzegovina and the Embassy of Bosnia to Herzegovina in New Delhi a few days ago gave full support to deliver the g-therapy to children with SSPE in Bosnia and Herzegovina.
Dear Mr. Isalkar, I want this story to reach all parents in the world, to be a motivation for all the doctors in the world, that is a big heart as it has dr.Oswal and his team, to willingness of parents to children with SSPE have a decent life, can work together to bring improvement in the treatment of SSPE. It's possible!
God bless you! God bless dr.Oswal and his team. God bless India.
PS. For all documents, their medical records, all you need are at your disposal. Greetings from Edna to our Association!
GSM: +387 (0) 60 345 26 96
Kakanj, Bosnia and Herzegovina
Case 1 (Email of parent of SSPE patient from Turkey):
I am a Turkish mother fighting against SSPE (Subakut Sklerozan Panensefalit ). My son’s name is Ufuk TANYILDIZI. He got sick at the age of 10 and has been living tied to bed for four years. I have got the your information via Nilgun Uluvar. We have been witnessing that our child has been graduaally recovering by means of your medicine. I would like to briefly mention about this..
His eyes are looking more meaningful. His dull looking has disappeared.. He started eye tracking, understanding what we say, and started to hit/touch us for the things he liked and disliked. His hands and feets are good looking, do not seem diseased. The tramble in his legs diminished.
I had sent the recent video, EGE and MR reports to you through Ms.. Nilgün. Now, I have been waiting for medicine for level 4.
As SSPE families, we have established a non-governmental organization to search for SSPE disease. We have contacted SSPE families from different countries of the world via this organisation and our website. We have been trying to help them in all aspects.
Please kind notice that, we are deeply grateful for your priceless help of which in return you asked us nothing. We thank you very much.
With our very best regards
Sibel TANYILDIZI ( Mother of Ufuk TANYILDIZI )
Case 2 (Opinion of German neurologist Dr. Garner):
27 year old male with SSPE
The data presented here are taken from the medical records I was able to see at Dr. Oswal's Clinic.
The young man was referred to Dr. Oswal on 18th of December 2001. He was healthy until 2 years before, then first developping headache and some psychiatric abnormalities. One year before referring him to Dr. Oswal he developped involuntary jerky movements neck hands and legs. The EEG at that time showed epileptiform activity and slow background activity.
At admission he was unable to stand or walk independently. Involuntary movements were present, speech was unclear, not understanable and he was dependent for all of his daily activities. Walking only was possible with two hand support. Hand mouth co-ordination was dysmetric. Moderate spasticity was present in all limbs. Intellectual ability was reduced. Physiotherapy was not done, however some antiepileptic drugs were given.
After starting g-therapy in december 2001, two month later no changes could be observed. However one year later the records show significant improvement in walking with no help required. Jumping also possible. He is reading newspaper now, is independent in daily activities and talking improved. Still he gets exited easily. Jerks were still present, however reduced.
The follow up on 28th of July 2004 shows further improvement. No jerks now present. Is able to perform easy jobs like bringing groceries from shop etc. Walking is normal, can ride bicycle now. He is independent in all daily activities.
Last checkup on 21.6.2006: Still some forgetfulness, otherwise positive changes preserved. Occasionally headache and vomiting. Still no job, but able to live nicely with his family, not requiring any help.
Medical history: The diagnosis of SSPE (Subacute sclerosing panencephalitis) was given by a neurologist from Mediciti Hospital in June 2001 according to typical clinical findings, EEG and laboratory findings. The EEG at this time showed multifocal epileptiform activity. Clinically he was frowsy, restless, showing sudden jerky movements, not comprehending commands and not cooperativ for examination. Measles antibodies (IgG) in CSF were positive.
The diagnosis was confirmed by a neurologist (Dr. Ichaporia) in Pune on 18th of December 2001when g-therapy was started.
EEG followup (Dr. Ichaporia) from 17.12.2002 showed improvement with returning background activity to normal and marked reduced periodic complexes in the frontal runs.
EEG done on 11.6.2003, on 27.;7.2004 and 21.6.2006 all were within normal limits.
So as a summary I conclude that this is a very rare case of a patient recovering from SSPE to almost normal state for last three years under Dr. Oswals g-therapy.
Case summary done by
Dr. Christoph Garner
KWA Klink Stift Rottal
Bad Griesbach Germany
e-mail: garner-christoph@ kwa.de
Copyright © 2018 Dr. GUNVANT Oswal - All Rights Reserved.
· This site is intended to provide basic information regarding G Therapy. It does not have advice or prescriptions for your medical problems. The information on this site is Dr. Oswal’s observation from research in the field of developmental disabilities with G Therapy. Parents and care takers are strongly advised to consult their pediatrician or doctor before starting this therapy. We have presented case studies, photographs, video clippings, news clippings and parents' and professionals' testimonials on this site with their permission to do so, to the best of our knowledge. If in case we have missed out on anything or if anyone has suggestions about their comments being made public, please do let us know and we will take appropriate measures.
· In addition: Center for Life Sciences, Health and Medicine (CLSHM) has complied with the relevant laws in india and specify that the jurisdiction lies within india.
· If any foreign laws have to be complied with by the user of the site then it will be the responsibility of the user to comply with the foreign laws and CLSHM will not be held responsible for the same.
· The information kept is updated regularly on the basis of the research and is kept as accurate and current as possible we make no warranty of any kind, implied or express, as to its accuracy, completeness or appropriateness for any purpose.
· CLSHM will make an effort to correct errors brought to our attention.
· The content on the site is presented in a summary form, is general in nature, and is provided for informational purposes only. The content is not intended in any way to be a substitute for professional medical advice.
· CLSHM does not recommend or endorse any specific test, products, or procedures that may be mentioned on the site.